After seeing 7 different specialists, thank you to Dr. Henry for being the very first person in my life to never settle without a solution!
My migraines started in February of 2009. I can remember looking at Valentine’s present a friend had gotten his girlfriend and my vision started to blur and I could not read an engraving right in front of me. Since then I have never had a full day without pain.
I’ve seen over 10 different doctors all who knew exactly what was causing the problem, and had the magic answer. I went through multiple tests, drugs, and other treatments all ending in the same frustration of being turned away. Being told there was nothing more to try, and to start from the beginning with a new doctor starts to feel hopeless. Everything in life is planned tentatively around it being a good day or a bad day, knowing that at any moment I can go from tolerable to laying flat out in the dark.
I’ve been seeing Dr. Henry for over 2 years now and since then I have been able to hold a steady job and go back to school. Dr. Henry is the first doctor to not stop trying; he is constantly looking for something new to try. He helps me manage my unbearable pain and nausea. Whether it’s fitting me in for a last minute IV, working around my 70-pound service dog, or planning a nerve block right before my final so I can focus on the important things in life rather than pain.
Being able to cope and manage pain is very different from having it be cured. I’m enthralled to see how much awareness this Foundation has raised. It is far worse than any headache you can imagine and it’s never as easy as popping an Excedrin and powering through. Managing depression is also a constant battle, but having hope is what drives me to keep trying to live a life as normal as possible, hope that this is something that can be beat and eventually will take away my pain.
At 21, I started getting severe migraines every month that were related to hormones. When I was 39, I got a migraine that lasted from October to March. I barely continued working every day; it was difficult being sensitive to light and sound.
Some years later, I now have chronic migraines; only one medication works to abort them, and it can cause rebound migraines.
Life with migraines is like walking on a high wire with a net that has holes in it.
In 2016, I was having daily migraines and nausea and discovered I needed gallbladder surgery. Following that, the nausea and migraines continued, which led to the discovery that genetically I don’t have the enzyme to digest sucrose and fructose. I now take the oral solution of Sucraid with my meals which has reduced the number of migraines I have to about 12 to 15 a month rather than daily.
Restorative yoga through the Daniele Byron Migraine Foundation Headache School has offered relaxation and stretching, which helps me deal with my migraines, along with the information provided during the sessions by the experts.
This smile quickly faded until it was almost a lost art. He struggled with chronic migraines and try as he may, his life of happiness faded and the migraines completely took over.
I lost my son in my eyes. As a parent, my heart ached and I just wished that I could take the pain away. I thought I’d never get my child back.
After a few years of no comfort and several physicians later we came to know Dr. Henry.
Within just a month time I was able to see my son return to the amazing and happy child that everyone used to know. Truly, we are so blessed. His favorite thing to do now is to write inspirational letters to everyone that he sees that needs just a bit of cheering up.
He is an active, thriving, inspiration of perseverance.
By Melisa Olsen
I’ve tried several medicines, and have joined a support group for teens with chronic migraines. Recently I was admitted into the Children’s Hospital of Philadelphia and I hope that that will help. I only wish that migraines were better understood and that it were a simple fix.
For our entire lives, my husband and I have been dedicated to fixing things and making our world a better place. Identify the problem, find and implement a solution, and get running again – that is what we have done all our lives! It is so frustrating to find that we can’t help our child, we can’t fix chronic migraines.
Migraine is a neurological event that medical researchers can now see occurring on functional MRIs. They can see a wave called “cortical spreading depression” spread across the brain during a migraine. This unexplained occurrence has been happening in my son’s brain every week, once a week for almost two years now. Right there in front of me, I can see a migraine happening to my son but I can’t break down why it is happening or find a way to stop it from happening.
Two years ago I did not know what a chronic migraine was and we went to the doctor to “fix” the problem. I assumed we would get a pill or some means of fixing the health issue and move on with our lives. The doctor diagnosed the condition I had never heard of, declared my son disabled, and handed me a 504 letter. I had never heard of chronic migraines and did not know what a 504 letter was. I went very quickly from having a “gifted” child to having a sick child.
This has affected our family in so many ways. For a teenager to get control of this difficult disease is a far greater challenge than many can understand. A doctor can tell you to learn to live with a disease, but in day-to-day life, you start to find out how hard that is to do. The medications can cause terrible side effects and switching medication can cause depression. There is panic when a migraine hits at the worst possible time and constant fatigue that can impede your child’s life more than the migraines.
The misunderstanding and underestimation of the effects of this disease have made the journey much more difficult than we had ever imagined. There is hope, there is happiness, and there will be a happy ending one way or the other. It just will take more time and determination than we had anticipated.
Worst of all, it means an inherent lack of understanding from most people and an automatic judgment about you. You just want someone who ‘gets it’. In reality, until people don’t have to experience the agony of migraines to comprehend what you’re going through, it’s better if they don’t get it, because you’ve been there, and you wouldn’t wish it on anyone.
In the year since Shine Her Light, Dr. Henry and his treatments have been a godsend. I don’t know how I can ever thank him and the foundation for always being hyper vigilant for those that suffer from the same affliction that I do. Without their constant support, I never would have been able to achieve my lifelong dreams.
The information I’ve gained has helped me to spread awareness and knowledge to those around me. My family, friends, and colleagues now know so much more than they ever did before, and that alone has improved my quality of life immensely. Understanding is key to just feeling that our pain is real – and that means the world.
Even if my migraines are as much a part of me as my eye color, having someplace to direct others to gain information about this disease that will always be a part of my life, has been so important.
Nothing about migraines is good, but they have taught me so much: compassion, understanding, and to savor the good moments, because those moments can change so quickly. Being able to let the people closest to me know what I go through and struggle with makes all the difference in my life. All I’ve ever wanted was someone who understood, and now I have a community that knows.
Thank you for all you do – every single one of you. We are stronger for our struggles, and better for the work the Danielle Byron Henry Migraine Foundation does on behalf of all of us.
This feeling still keeps me from making too many commitments – because I feel if I say “yes”, and have to cancel because of a migraine, people will think it’s just the “same old excuse” – even though it’s the truth.
In my 20’s my migraines got much worse. I saw many neurologists who wouldn’t even look me in the eye, just asked me what medications I wanted and sent me on my way – I didn’t want medication, I wanted help, some sort of resolution
After many failed neurologist appointments a friend referred me to Dr. Longe at Foothill Family Clinic. He was such a blessing, and a wonderful doctor, and the most amazing thing he did was refer me to Dr. Dan Henry. I’ve been under Dr. Henry’s care for about 8 years now, and although I still experience migraines, they are so much better than when I started seeing him. Dr. Henry truly shows compassion and understanding for and about this disease and his patients that no other medical professional I’ve seen has. He has a passion to help his patients and I am so grateful for all the help he’s given me. I am SO excited for what the future holds for the migraine community with Dr. Henry at the forefront of migraine treatment and research! Thank you Dr. Henry!
My life has completely changed. I used to be active in sports, pottery, and always on the go. Now I often have to sleep during the day or drag myself around to accomplish anything. Most people don’t understand me or think it could not really be that bad. There are doubters all around.
I have to fight off the depression when I tell people I can’t go because I am in too much pain, too tired or exhausted. I keep hoping there will be something in the future and I will get my old life back.
I have benefited from attending the Headache School since it began. Migraine Disease is complicated and needs numerous avenues, modalities, and suggestions from a wide variety of practitioners. The school has provided all of those. Seeing Dr Henry has also helped give me hope and courage to continue in my search to find what can help. Continuing with Botox has lessened my pain. I hope to continue to find new ways to help me in my quest with my migraines.
This year I’ve continued to listen to my body but have come to the realization that stress is a huge trigger for me. Living with Chronic Migraines at 21 is difficult because I should be going to school and building my future. Unfortunately, my future has been put on hold until I learn to control my body under stress.
Because of the success of last year’s fundraiser, The Danielle Byron Henry Migraine Foundation has created the Headache School and an adolescent support group. The adolescent support group has been the most impactful for me. The other participants have been amazingly supportive. I love having a group of friends who truly understand what I’m going through. I no longer feel so alone.
I’ve changed my lifestyle and will continue to make adjustments until I’m able to live a life that is as close to normal as possible.
Thank you for supporting me and my fellow migraineurs by coming tonight! You don’t know what tonight means to us.
The worst part about this disease however, is that it is invisible. There is no physical evidence of Migraine, no bumps or bruises, any hair loss or discoloration. Because of the covert nature of migraines, I am often misunderstood. My friends don’t understand why I skip out on activities, or would rather go to bed early than go to a party. My family doesn’t understand why I can be so irritable sometimes, but it is hard not to be frustrated when my head is always always always hurting.
I don’t remember what it feels like to wake up and feel “normal”. Not even good, not even great—just simply normal. I wake up every day wishing that this will be the day that I don’t have a headache anymore, but that day hasn’t come yet. I am hoping that with increased awareness and research, the cure will soon be found! Until then, I would advise everyone not to jump to conclusions the next time someone they know doesn’t want to go out, or seems a little frustrated. You honestly never know what other people are going through—they might even have Migraine disease.
After graduating with a degree in Special Education, I started teaching. While working with a particularly energetic and oppositional student, I received three separate blows to my head. At first I dismissed it, but this pain was different. They sent me to an ER where I was given narcotics for the pain. When there was no improvement, I was referred to a neurologist. I was unable to return to work due to the concussions and eventually was dismissed from my position. The kids were my world, they needed me, and I could not even tell them goodbye. I was recovering from concussions and trying to remember my routines and now everything had changed. I was scared to say my head hurt because I wanted to see the kids I loved so much. I wanted to as much as possible “put things behind me.” I started looking for a new job teaching special education. I did not want the migraine and trauma to follow me. I had an opportunity to start a new job. I still lived in pain. I was still emotional. I still felt depressed and I was still upset. Even in the summer I was having migraine. I was locking myself in my room for days to cry and sulk, and sleep. Bright lights continued to bother me. I was missing out on life. I was sad because I knew this was not just migraine. This was Chronic Migraine.
My first visit to Dr. Henry was in January 2017. I cried tears of joy knowing there is a doctor who knows about migraine and cares. I attend Headache School and yoga weekly. It has been a huge support for me to learn there are other people like me. I am grateful to learn there is hope. It is difficult sometimes not knowing the exact cause, but my migraine journal helps me track triggers, symptoms, times, and treatments.
Even as early as two days before a migraine begins her mood and well-being are compromised by irritability, depression, sensitivity to light and sound, difficulty concentrating and fatigue. It affects her speech and her comprehension is also impaired. My daughter is brilliant, a member of Mensa, making it especially heart breaking to see her wrestle with these symptoms.
Next comes the actual headache, which is so severe that she keeps her house cool and dark, even going so far to put the deepest light-blocking treatment on her windows and keeping the blinds closed. She struggles with accomplishing anything other than going to work (and frequently having to cut her day short) and sleeping. She is not able to have much of a social life because she never knows when she will be in so much pain that even plans to attend her favorite sources of entertainment — concerts and plays– must be cancelled. Teardra has always been active, accomplishing much in life. The headaches have forced her to take a step back from the citywide book club she runs, the side business she founded, weekly volunteering and ongoing academic endeavors. My husband and I help her out with homework, yard work and housework at times because she is feeling sick so frequently.
Migraines are a debilitating disease that only the sufferer and her family members can know the full extent of how it impedes a person’s ability to live a normal life.
In 11 months, I finally graduate from BYU with a degree in communications. Dr. Henry is confident I’ll be healthy enough to commit to a full-time job upon graduation. I’m not as sure as he is, but I’m pretending to be.
My greatest fear is that I’ll never be able to be a mom. Or if I do become a mom, I won’t be a good one. But there is something inside of me that tells me that I will graduate, I will be able to work a full-time job and I will become a wife and mother. That something is called hope. And it’s the reason I’m still here. My hope is fed by the hope of others that love me— my parents, Dr. Henry, my grandparents, my Savior and my Heavenly Parents. This hope gives life to what often feels like a lifeless Amanda. This hope sustains, lifts and carries me. This hope enables me to love, not blame, my Father in Heaven. Above all, this hope is evident of God’s love, awareness and never-ending grace.
Migraines have robbed me of the life I’d imagined for my family and myself. I’ve always wanted to be a mom, and in 2009 my husband and I were blessed with a healthy baby boy. He is the world to us! After many health challenges and failed attempts at getting pregnant again, we’ve come to the realization that we aren’t able to have any more children of our own. That has been earth shattering for me.
Migraines took my successful career away from, and ended relationships because I’m not always dependable. They steal time and memories from me because I’m unable to attend events. The guilt is insurmountable when I have to explain to my 8 year old that mom can’t come to something special of his because “I’m sick again!”
Migraines can steal a lot of things from me, but it can’t steal my smile or my life – I won’t let it! My fight and stubbornness has become a great strength and power in helping me fight off depression, self doubt and pity. I’ve learned to be easier on myself and to have compassion for the battle I’m fighting, even when others don’t.
Migraines are a lonely disease.
The cycle continued for three years, but life was busy and I didn’t think much of it until I developed a stomach ulcer from all the medication I was taking. I hadn’t realized how dependent I had become on the medication and truly how bad my migraines were until I went to see Dr. Henry.
Although I have only been seeing him for 6 months, I am already feeling so much better! I am off of my daily medication regimen and only have to take my rescue medication a few days a week. My overall mood has improved now that headaches don’t plague my daily life anymore. I am so grateful to Dr. Henry for giving me my quality of life back.
I am currently 9 months pregnant, waiting to have this baby any day now! Dr. Henry was by my side the entire way with nerve block treatments so I could have a pain free and medication free pregnancy.
I’m confident I will be able to be an attentive mother because of the treatment and understanding I receive from him. My life and my family’s life are forever changed because of Dr. Dan C. Henry!
On a very important business trip to Washington, D.C. a volcano exploded. In a very public setting, I crashed from a three-day nightmare. My wife and I decided it had to end.
We saw Neurologists, Orthopedic specialists, and a long string of doctors. After a visit with Dr. Azarcon, my family doctor, he recommended that I see Dr. Henry who was specializing in treatment of chronic headaches. From the first visit he dug into the symptoms, causes, triggers and spent an enormous amount of time with me. We began a personalized treatment plan and it has taken two years to get the headaches under control, but it is working. I’ve gone from daily headaches to 1 or 2 headaches per month and I can treat them quickly and effectively.
My wife and I decided it was time to retire and eliminate stress triggers from my life. I was old enough to retire but felt a little forced into it. Now we have a home on a modest little farm in Cache County. It’s not a completely headache-free life, but very close to it. Life is good and I feel liberated.
It’s my hope that Dr. Henry and his foundation will be able to produce results for millions of sufferers by providing better education and awareness for patients, primary care physicians, and other caregivers.
Living with migraines is tedious, painful, and isolating. Migraines affect social and professional lives because you to have to cancel dinner plans or miss work. There just isn’t another option. Even going to the grocery store during a migraine cycle can be impossible. There are many times where I can’t even hold a normal conversation because I can’t focus on anything but the building pressure in my head. About every other migraine, I’ll beg my husband to drill a hole in my head because I’m convinced that doing so will FINALLY make my head feel better (obviously, he declines). It can be discouraging to fight something invisible to others while trying to explain that it is so much more than “just a headache”.
Although I have watched others suffer unfairly from migraines, I’ve also learned invaluable lessons. I’ve found that those who suffer from chronic diseases are among a rare group of the most kind and understanding people. That group includes the Henry family. Dr. Henry has shown me kindness, support, and a light for the future. He has given me options I previously did not know exist. Because of the Henry family’s work, many like myself can live functioning, “normal” lives with migraines. Within the Danielle Byron Henry Foundation, there is hope for those who feel hopeless and misunderstood. There could be no greater mission for a foundation than that.
After years of searching for answers and relief from doctors, chiropractors, massage therapists, physical therapists, cranial orthopedics, surgery, medication, sleep studies, a daith piercing, and Botox she was FINALLY diagnosed with New Daily Persistent Headaches by Dr. Henry. He has been instrumental in helping Savvy.
Just recently we were able to celebrate the first day in seven years that she hasn’t had a headache because of a nerve-block injection. While it hasn’t completely eliminated her headaches, she has found some relief. Dr. Henry is our hero and we love that he has dedicated his practice to helping those who suffer from migraines and headaches.
I got my first migraine when my fourth child was about six months old. My three older children were 5, 3, and 1 ½ at the time. Fast-forward 17 years, and another six children, I’m now in a much better place!
Dr. Dorothy Williams and Dr. Dan Henry became my salvation when I found them about two years ago. These physicians are fully committed to listening, understanding, and responding, in the utmost kind, compassionate, and professional manner. After incorporating a multifaceted approach (with a lot of trial and error with medicine and other treatments), I am, finally, seeing a decline in the number and intensity of my migraines.
I live my life to the fullest, not letting the disease prevent me from doing the things I love – taking care of my 10 children, and living an active life: playing tennis, skiing, singing, hiking, going to concerts, volunteering, teaching, creating art, and spending time with my awesome husband!
“Life is Good” is no longer a clever motto for T-shirts. It’s become my reality following almost two decades of living in a hellish prison inside my head. I’m sincerely thankful that I made it out alive, and I love how it feels to feel good.
During the time my head migraines sparked, I also began experiencing stomach migraines. At the time, I didn’t know these two were related and I had many medical tests done, with again no answers as to what was causing my stomach such discomfort each time I ate anything. I dreaded eating because of the pain I knew would come, which led to unhealthy weight loss.
Migraines are truly disabling. Dr. Henry has helped me manage my migraines and I now am even able to experience many headache-free days! I am so grateful for the care of Dr. Henry for helping me feel healthy again.
From consulting with the Mayo Clinic, helping get us into the Jacob’s Neurological Institute to look for additional answers, calling me after hours, to making room in his busy schedule for me. His compassion has carried me through very dark times when I wasn’t sure how I would get through. He’s never given up on me and has continually worked to find better, more personalized solutions.
His continued dedication has lead us to answers that have allowed me to have a full and fulfilling life. With his help, I have gone from having migraines that lasted days or weeks, that left me unable to participate in daily life, and required frequent intervention to minimal migraines due to preventative measures. Our family is forever grateful for the love, compassion, and service Dr Henry has provided to us.
Thanks to Dr. Henry’s help, I continue to get stronger after my migraines became so severe, they left me re-learning to walk and unable to take care of my kids.
I am happy to report, my migraines are more manageable than ever due to Dr. Henry’s specialized nerve blocks in my eyebrows, forehead and base of my skull. Dr. Henry also provides helpful in office IV treatments as needed as well.
Right now, my biggest migraine related concern is for my daughters, ages eight and ten. They are already battling migraines. It breaks my heart to see them suffer.
It gives me great hope to think of a comprehensive migraine treatment center that could be there to support them through the rest of their lives.
My hope for my daughters is a life free from the ravaging effects of migraine. How grateful I am for the Danielle Byron Henry Migraine Foundation for turning my hope for a migraine managed and pain free life for my girls into a reality!
It was not until I felt hopeful that I looked back on the suffering I had been hiding or trying to ignore all those years. I realized that pain takes me away from myself and loved ones because it is impossible to be fully present while a sharp, stabbing pain throbs in my head. Working, my concentration, sleep, even driving felt disrupted. I could not be at my best, ever.
Thankfully, after many months of effort, times of relief from the headache have come. I am so grateful.
I made an appointment with my family practitioner that sent me to a neurologist. I felt like no one was taking me serious. After an MRI and CT, I was told I might have Lou Gehrig’s disease. I sought a second at the U of U Neurology. I was overjoyed when she told me I suffered from migraines and did not have Lou Gehrig’s disease. I was given a new drug, literature, and information on identifying my triggers. After 10 years of suffering, I felt like I had an answer to help me regain myself. My life was better. However, I continued to suffer migraines up to 4 times a week. They were beginning to affect my life again. I thought there was nothing more I could do.
A little over a year ago, my sweet husband signed me up for a migraine study. I wanted to try anything. I met Dr. Henry. He…was…amazing. He was the doctor I should’ve met years ago. He understood my migraine disease. I started the study and had a very successful year with this new drug. I didn’t suffer hardly at all from migraine attacks. I was getting my life back. Once the study ended, I continued to follow-up with Dr. Henry. Through his knowledge and experience, we are getting my life back. We are trying things I never knew existed. I tell everyone I meet who has migraines to see this amazing man and he will change your life. I know I still have a long road ahead, but I also feel like I am more in control than I ever have been. Now, after nearly 20 years, I feel free.
Recently they have progressively gotten worse, I have missed more school physically and mentally this year than I have in my entire life and my grades have suffered.
One of my worst migraines ever was in March, I couldn’t move. I was in bed for 36 hours straight taking medication after medication, trying to get it down to a sustainable level. Even after could I get it down to a level at which I could finally get out of bed it would be difficult do things because of the pain in my head.